Profiling trial burden and patients attitudes to improve clinical research in epidermolysis bullosa.

Christine Prodinger; Anja Diem; Katherina Ude-Schoder; Josefina Piñón-Hofbauer; Sophie Kitzmueller; Johann Bauer; Martin Laimer

doi:10.1186/s13023-020-01443-3

Profiling trial burden and patients attitudes to improve clinical research in epidermolysis bullosa.

Christine Prodinger^* (First author)
, Anja Diem (Co-author)
, Katherina Ude-Schoder
, Josefina Piñón-Hofbauer (Co-author)
, Sophie Kitzmueller
, Johann Bauer (Co-author)
, Martin Laimer (Last author)

^*Corresponding author for this work

Research output: Contribution to journal › Original Article › peer-review

12 Citations (Web of Science)

Original language	English
Pages (from-to)	182
Journal	ORPHANET JOURNAL OF RARE DISEASES
Volume	15
Issue number	1
DOIs	https://doi.org/10.1186/s13023-020-01443-3
Publication status	Published - 2020

Keywords

QUALITY-OF-LIFE
RANDOMIZED CONTROLLED-TRIALS
PARTICIPATION
CANCER
RECRUITMENT
BARRIERS
MOTIVES

Access to Document

10.1186/s13023-020-01443-3

Cite this

@article{3a1fcb9c35e74794bbdb745978f6c0a9,

title = "Profiling trial burden and patients attitudes to improve clinical research in epidermolysis bullosa.",

keywords = "QUALITY-OF-LIFE, RANDOMIZED CONTROLLED-TRIALS, PARTICIPATION, CANCER, RECRUITMENT, BARRIERS, MOTIVES",

author = "Christine Prodinger and Anja Diem and Katherina Ude-Schoder and Josefina Pi{\~n}{\'o}n-Hofbauer and Sophie Kitzmueller and Johann Bauer and Martin Laimer",

note = "Prodinger; Bauer; Laimer: Paracelsus Med Univ Salzburg, Univ Hosp, Dept Dermatol *** Allergol, Muellner Hauptstr 48, A-5020 Salzburg, Austria; Diem; Ude-Schoder; Kitzmueller, : Paracelsus Med Univ Salzburg, Univ Hosp, Dept Dermatol *** Allergol, EB House Austria, A-5020 Salzburg, Austria; Pinon-Hofbauer: Paracelsus Med Univ Salzburg, Univ Hosp, Dept Dermatol *** Allergol, EB House Austria,Res Program Mol Therapy Genoderm, A-5020 Salzburg, Austria",

year = "2020",

doi = "10.1186/s13023-020-01443-3",

language = "English",

volume = "15",

pages = "182",

journal = "ORPHANET JOURNAL OF RARE DISEASES",

issn = "1750-1172",

publisher = "Springer Nature",

number = "1",

}

TY - JOUR

T1 - Profiling trial burden and patients attitudes to improve clinical research in epidermolysis bullosa.

AU - Prodinger, Christine

AU - Diem, Anja

AU - Ude-Schoder, Katherina

AU - Piñón-Hofbauer, Josefina

AU - Kitzmueller, Sophie

AU - Bauer, Johann

AU - Laimer, Martin

N1 - Prodinger; Bauer; Laimer: Paracelsus Med Univ Salzburg, Univ Hosp, Dept Dermatol *** Allergol, Muellner Hauptstr 48, A-5020 Salzburg, Austria; Diem; Ude-Schoder; Kitzmueller, : Paracelsus Med Univ Salzburg, Univ Hosp, Dept Dermatol *** Allergol, EB House Austria, A-5020 Salzburg, Austria; Pinon-Hofbauer: Paracelsus Med Univ Salzburg, Univ Hosp, Dept Dermatol *** Allergol, EB House Austria,Res Program Mol Therapy Genoderm, A-5020 Salzburg, Austria

PY - 2020

Y1 - 2020

KW - QUALITY-OF-LIFE

KW - RANDOMIZED CONTROLLED-TRIALS

KW - PARTICIPATION

KW - CANCER

KW - RECRUITMENT

KW - BARRIERS

KW - MOTIVES

U2 - 10.1186/s13023-020-01443-3

DO - 10.1186/s13023-020-01443-3

M3 - Original Article

C2 - 32650809

SN - 1750-1172

VL - 15

SP - 182

JO - ORPHANET JOURNAL OF RARE DISEASES

JF - ORPHANET JOURNAL OF RARE DISEASES

IS - 1

ER -