Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization.

Eva W H Korte; Tobias Welponer; Jan Kottner; Sjoukje van der Werf; Peter C van den Akker; Barbara Horváth; Dimitra Kiritsi; Martin Laimer; Anna M G Pasmooij; Verena Wally; Maria C Bolling

doi:10.1093/bjd/ljad077

Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization.

Eva W H Korte
, Tobias Welponer (First author)
, Jan Kottner
, Sjoukje van der Werf
, Peter C van den Akker
, Barbara Horváth
, Dimitra Kiritsi
, Martin Laimer (Co-author)
, Anna M G Pasmooij
, Verena Wally (Co-author)
, Maria C Bolling

Research output: Contribution to journal › Review article › peer-review

22 Citations (Web of Science)

Original language	English
Pages (from-to)	80-90
Number of pages	11
Journal	BRITISH JOURNAL OF DERMATOLOGY
Volume	189
Issue number	1
DOIs	https://doi.org/10.1093/bjd/ljad077
Publication status	Published - 7 Jul 2023

Keywords

RANDOMIZED CONTROLLED-TRIALS
QUALITY-OF-LIFE
EXTRACUTANEOUS MANIFESTATIONS
SYSTEMATIC REVIEWS
INHERITED FORMS
COMPLICATIONS
CONSENSUS
TAXONOMY
IMPACT
COSMIN
Humans
Epidermolysis Bullosa Dystrophica
Wound Healing
Epidermolysis Bullosa/therapy
Registries
Patient Reported Outcome Measures

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10.1093/bjd/ljad077

22 Citations
1 Correction

Correction to: Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization
Korte, E. W. H., Welponer, T. (First author), Kottner, J., van der Werf, S., van den Akker, P. C., Horvath, B., Kiritsi, D., Laimer, M. (Co-author), Pasmooij, A. M. G., Wally, V. (Co-author) & Bolling, M. C., 29 May 2024, In: BRITISH JOURNAL OF DERMATOLOGY. 191, 1, p. e2-e2 1 p.
Research output: Contribution to journal › Correction › peer-review

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Cite this

Korte, E. W. H., Welponer, T., Kottner, J., van der Werf, S., van den Akker, P. C., Horváth, B., Kiritsi, D., Laimer, M., Pasmooij, A. M. G., Wally, V., & Bolling, M. C. (2023). Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization. BRITISH JOURNAL OF DERMATOLOGY, 189(1), 80-90. https://doi.org/10.1093/bjd/ljad077

@article{30e6627d03c842b6b7a176591dc5d02d,

title = "Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization.",

keywords = "RANDOMIZED CONTROLLED-TRIALS, QUALITY-OF-LIFE, EXTRACUTANEOUS MANIFESTATIONS, SYSTEMATIC REVIEWS, INHERITED FORMS, COMPLICATIONS, CONSENSUS, TAXONOMY, IMPACT, COSMIN, Humans, Epidermolysis Bullosa Dystrophica, Wound Healing, Epidermolysis Bullosa/therapy, Registries, Patient Reported Outcome Measures",

author = "Korte, \{Eva W H\} and Tobias Welponer and Jan Kottner and \{van der Werf\}, Sjoukje and \{van den Akker\}, \{Peter C\} and Barbara Horv{\'a}th and Dimitra Kiritsi and Martin Laimer and Pasmooij, \{Anna M G\} and Verena Wally and Bolling, \{Maria C\}",

note = "Wally: Research Programme for Molecular Therapy of Genodermatoses, EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria; Welponer, Laimer: Department of Dermatology and Allergology",

year = "2023",

month = jul,

day = "7",

doi = "10.1093/bjd/ljad077",

language = "English",

volume = "189",

pages = "80--90",

journal = "BRITISH JOURNAL OF DERMATOLOGY",

issn = "0007-0963",

publisher = "Blackwell Verlag",

number = "1",

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Korte, EWH, Welponer, T, Kottner, J, van der Werf, S, van den Akker, PC, Horváth, B, Kiritsi, D, Laimer, M, Pasmooij, AMG, Wally, V & Bolling, MC 2023, 'Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization.', BRITISH JOURNAL OF DERMATOLOGY, vol. 189, no. 1, pp. 80-90. https://doi.org/10.1093/bjd/ljad077

TY - JOUR

T1 - Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization.

AU - Korte, Eva W H

AU - Welponer, Tobias

AU - Kottner, Jan

AU - van der Werf, Sjoukje

AU - van den Akker, Peter C

AU - Horváth, Barbara

AU - Kiritsi, Dimitra

AU - Laimer, Martin

AU - Pasmooij, Anna M G

AU - Wally, Verena

AU - Bolling, Maria C

N1 - Wally: Research Programme for Molecular Therapy of Genodermatoses, EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria; Welponer, Laimer: Department of Dermatology and Allergology

PY - 2023/7/7

Y1 - 2023/7/7

KW - RANDOMIZED CONTROLLED-TRIALS

KW - QUALITY-OF-LIFE

KW - EXTRACUTANEOUS MANIFESTATIONS

KW - SYSTEMATIC REVIEWS

KW - INHERITED FORMS

KW - COMPLICATIONS

KW - CONSENSUS

KW - TAXONOMY

KW - IMPACT

KW - COSMIN

KW - Humans

KW - Epidermolysis Bullosa Dystrophica

KW - Wound Healing

KW - Epidermolysis Bullosa/therapy

KW - Registries

KW - Patient Reported Outcome Measures

U2 - 10.1093/bjd/ljad077

DO - 10.1093/bjd/ljad077

M3 - Review article

C2 - 37098154

SN - 0007-0963

VL - 189

SP - 80

EP - 90

JO - BRITISH JOURNAL OF DERMATOLOGY

JF - BRITISH JOURNAL OF DERMATOLOGY

IS - 1

ER -

Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization.

Keywords

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Research output

Correction to: Heterogeneity of reported outcomes in epidermolysis bullosa clinical research: a scoping review as a first step towards outcome harmonization

Cite this