Health Data Democratization in Austria: Patients' Perspective

Rada Hussein; Andreas Stainer-Hochgatterer; Josef Niebauer; Thomas Palfinger; Raphaela Kaisler

doi:10.3233/SHTI230412

Health Data Democratization in Austria: Patients' Perspective

Rada Hussein, Andreas Stainer-Hochgatterer, Josef Niebauer (Co-author), Thomas Palfinger, Raphaela Kaisler

Research output: Contribution to journal › Original Article › peer-review

Abstract

Health data democratization requires a transparent, protected, and interoperable data-sharing environment. We conducted a co-creation workshop with patients living with chronic diseases and relevant stakeholders to explore their opinion on health data democratization, ownership, and sharing in Austria. Participants showed their willingness to share their health data for clinical and research purposes; provided that appropriate transparency and data protection measures are provided.

Original language	English
Pages (from-to)	18-19
Number of pages	2
Journal	STUDIES IN HEALTH TECHNOLOGY AND INFORMATICS
Volume	305
DOIs	https://doi.org/10.3233/SHTI230412
Publication status	Published - 29 Jun 2023

Keywords

Humans
Austria
Information Dissemination
Ownership
Patients

Access to Document

10.3233/SHTI230412

Cite this

@article{c1801bced6a24b9e92bf0522f8abe494,

title = "Health Data Democratization in Austria: Patients' Perspective",

abstract = "Health data democratization requires a transparent, protected, and interoperable data-sharing environment. We conducted a co-creation workshop with patients living with chronic diseases and relevant stakeholders to explore their opinion on health data democratization, ownership, and sharing in Austria. Participants showed their willingness to share their health data for clinical and research purposes; provided that appropriate transparency and data protection measures are provided.",

keywords = "Humans, Austria, Information Dissemination, Ownership, Patients",

author = "Rada Hussein and Andreas Stainer-Hochgatterer and Josef Niebauer and Thomas Palfinger and Raphaela Kaisler",

note = "Niebauer: University Institute of Sports Medicine, Prevention and Rehabilitation, Paracelsus Medical University, Salzburg, Austria",

year = "2023",

month = jun,

day = "29",

doi = "10.3233/SHTI230412",

language = "English",

volume = "305",

pages = "18--19",

journal = "STUDIES IN HEALTH TECHNOLOGY AND INFORMATICS",

issn = "0926-9630",

}

TY - JOUR

T1 - Health Data Democratization in Austria

T2 - Patients' Perspective

AU - Hussein, Rada

AU - Stainer-Hochgatterer, Andreas

AU - Niebauer, Josef

AU - Palfinger, Thomas

AU - Kaisler, Raphaela

N1 - Niebauer: University Institute of Sports Medicine, Prevention and Rehabilitation, Paracelsus Medical University, Salzburg, Austria

PY - 2023/6/29

Y1 - 2023/6/29

N2 - Health data democratization requires a transparent, protected, and interoperable data-sharing environment. We conducted a co-creation workshop with patients living with chronic diseases and relevant stakeholders to explore their opinion on health data democratization, ownership, and sharing in Austria. Participants showed their willingness to share their health data for clinical and research purposes; provided that appropriate transparency and data protection measures are provided.

AB - Health data democratization requires a transparent, protected, and interoperable data-sharing environment. We conducted a co-creation workshop with patients living with chronic diseases and relevant stakeholders to explore their opinion on health data democratization, ownership, and sharing in Austria. Participants showed their willingness to share their health data for clinical and research purposes; provided that appropriate transparency and data protection measures are provided.

KW - Humans

KW - Austria

KW - Information Dissemination

KW - Ownership

KW - Patients

U2 - 10.3233/SHTI230412

DO - 10.3233/SHTI230412

M3 - Original Article

C2 - 37386946

SN - 0926-9630

VL - 305

SP - 18

EP - 19

JO - STUDIES IN HEALTH TECHNOLOGY AND INFORMATICS

JF - STUDIES IN HEALTH TECHNOLOGY AND INFORMATICS

ER -

Health Data Democratization in Austria: Patients' Perspective

Abstract

Keywords

Access to Document

Fingerprint

Cite this