Harmonization of outcomes in epidermolysis bullosa - report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting.

Eva W H Korte; Phyllis I Spuls; Peter C van den Akker; Dimitra Kiritsi; Martin Laimer; Anna M G Pasmooij; Rainer Riedl; Elizabeth Vroom; Verena Wally; Tobias Welponer; Maria C Bolling

doi:10.1093/bjd/ljad361

Harmonization of outcomes in epidermolysis bullosa - report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting.

Eva W H Korte
, Phyllis I Spuls
, Peter C van den Akker
, Dimitra Kiritsi
, Martin Laimer (Co-author)
, Anna M G Pasmooij
, Rainer Riedl
, Elizabeth Vroom
, Verena Wally (Co-author)
, Tobias Welponer (Co-author)
, Maria C Bolling

Research output: Contribution to journal › Original Article › peer-review

Abstract

The COSEB kick-off meeting was organized in April 2023, and highlighted the stakeholder perspectives on the unmet and urgent need to work towards reasonable harmonization of outcome measurement in epidermolysis bullosa (EB) by developing core outcome sets for the different EB types. Standardized and uniform outcome assessment holds great promise to reduce selective reporting, improve the comparability and pooling of treatment outcomes, and enhance the efficacy of future research in EB.

Original language	English
Number of pages	3
Journal	BRITISH JOURNAL OF DERMATOLOGY
Early online date	Oct 2023
DOIs	https://doi.org/10.1093/bjd/ljad361
Publication status	Published - 4 Oct 2023

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Korte, E. W. H., Spuls, P. I., van den Akker, P. C., Kiritsi, D., Laimer, M., Pasmooij, A. M. G., Riedl, R., Vroom, E., Wally, V., Welponer, T., & Bolling, M. C. (2023). Harmonization of outcomes in epidermolysis bullosa - report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting. BRITISH JOURNAL OF DERMATOLOGY. https://doi.org/10.1093/bjd/ljad361

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title = "Harmonization of outcomes in epidermolysis bullosa - report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting.",

abstract = "The COSEB kick-off meeting was organized in April 2023, and highlighted the stakeholder perspectives on the unmet and urgent need to work towards reasonable harmonization of outcome measurement in epidermolysis bullosa (EB) by developing core outcome sets for the different EB types. Standardized and uniform outcome assessment holds great promise to reduce selective reporting, improve the comparability and pooling of treatment outcomes, and enhance the efficacy of future research in EB.",

author = "Korte, \{Eva W H\} and Spuls, \{Phyllis I\} and \{van den Akker\}, \{Peter C\} and Dimitra Kiritsi and Martin Laimer and Pasmooij, \{Anna M G\} and Rainer Riedl and Elizabeth Vroom and Verena Wally and Tobias Welponer and Bolling, \{Maria C\}",

note = "Laimer, Welponer: Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria; Wally: EB House Austria, Research Program for Molecular Therapy of Genodermatoses, Department of Dermatology and Allergology, University Hospital of the Paracelsus Medical University, Salzburg, Austria",

year = "2023",

month = oct,

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doi = "10.1093/bjd/ljad361",

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AU - Korte, Eva W H

AU - Spuls, Phyllis I

AU - van den Akker, Peter C

AU - Kiritsi, Dimitra

AU - Laimer, Martin

AU - Pasmooij, Anna M G

AU - Riedl, Rainer

AU - Vroom, Elizabeth

AU - Wally, Verena

AU - Welponer, Tobias

AU - Bolling, Maria C

N1 - Laimer, Welponer: Department of Dermatology and Allergology and EB House Austria, University Hospital of the Paracelsus Medical University, Salzburg, Austria; Wally: EB House Austria, Research Program for Molecular Therapy of Genodermatoses, Department of Dermatology and Allergology, University Hospital of the Paracelsus Medical University, Salzburg, Austria

PY - 2023/10/4

Y1 - 2023/10/4

N2 - The COSEB kick-off meeting was organized in April 2023, and highlighted the stakeholder perspectives on the unmet and urgent need to work towards reasonable harmonization of outcome measurement in epidermolysis bullosa (EB) by developing core outcome sets for the different EB types. Standardized and uniform outcome assessment holds great promise to reduce selective reporting, improve the comparability and pooling of treatment outcomes, and enhance the efficacy of future research in EB.

AB - The COSEB kick-off meeting was organized in April 2023, and highlighted the stakeholder perspectives on the unmet and urgent need to work towards reasonable harmonization of outcome measurement in epidermolysis bullosa (EB) by developing core outcome sets for the different EB types. Standardized and uniform outcome assessment holds great promise to reduce selective reporting, improve the comparability and pooling of treatment outcomes, and enhance the efficacy of future research in EB.

U2 - 10.1093/bjd/ljad361

DO - 10.1093/bjd/ljad361

M3 - Original Article

C2 - 37792735

SN - 0007-0963

JO - BRITISH JOURNAL OF DERMATOLOGY

JF - BRITISH JOURNAL OF DERMATOLOGY

ER -

Harmonization of outcomes in epidermolysis bullosa - report of the Core Outcome Sets for Epidermolysis Bullosa (COSEB) kick-off meeting.

Abstract

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