Developing outcome measures for pediatric mitochondrial disorders: which complaints and limitations are most burdensome to patients and their parents?

Saskia Koene; Saskia Wortmann; Maaike C de Vries; An I Jonckheere; Eva Morava; Imelda J M de Groot; Jan A M Smeitink

doi:10.1016/j.mito.2012.11.002

Developing outcome measures for pediatric mitochondrial disorders: which complaints and limitations are most burdensome to patients and their parents?

Saskia Koene, Saskia Wortmann (Co-author), Maaike C de Vries, An I Jonckheere, Eva Morava, Imelda J M de Groot, Jan A M Smeitink

Research output: Contribution to journal › Original Article › peer-review

32 Citations (Web of Science)

Original language	English
Pages (from-to)	15-24
Journal	MITOCHONDRION
Volume	13
Issue number	1
DOIs	https://doi.org/10.1016/j.mito.2012.11.002
Publication status	Published - 2013

Keywords

MULTIDIMENSIONAL FATIGUE SCALE
VALIDITY
RELIABILITY
CANCER
FEASIBILITY
ACTIVATION
DISEASE

Access to Document

10.1016/j.mito.2012.11.002

Cite this

@article{6a4f0ed51b7b4dbd9495a391a875455e,

title = "Developing outcome measures for pediatric mitochondrial disorders: which complaints and limitations are most burdensome to patients and their parents?",

keywords = "MULTIDIMENSIONAL FATIGUE SCALE, VALIDITY, RELIABILITY, CANCER, FEASIBILITY, ACTIVATION, DISEASE",

author = "Saskia Koene and Saskia Wortmann and {de Vries}, {Maaike C} and Jonckheere, {An I} and Eva Morava and {de Groot}, {Imelda J M} and Smeitink, {Jan A M}",

year = "2013",

doi = "10.1016/j.mito.2012.11.002",

language = "English",

volume = "13",

pages = "15--24",

journal = "MITOCHONDRION",

issn = "1567-7249",