A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis

NM Muschol; BK Burton; C Ficicioglu; M Magner; M Gil-Campos; M Lopez-Rodriguez; P Jayakar; A Lund; G Tal; JE Garcia; KM Stepien; C Ellaway; W Al-Hertani; R Giugliani; S Cathey; JB Hennermann; C Lampe; M McNutt; F Lagler; M Scarpa; VR Sutton; N Guffon

doi:10.1016/j.ymgme.2023.107974

A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis

NM Muschol
, BK Burton
, C Ficicioglu
, M Magner
, M Gil-Campos
, M Lopez-Rodriguez
, P Jayakar
, A Lund
, G Tal
, JE Garcia
, KM Stepien
, C Ellaway
, W Al-Hertani
, R Giugliani
, S Cathey
, JB Hennermann
, C Lampe
, M McNutt
, F Lagler
, M Scarpa

VR Sutton, N Guffon

Research output: Contribution to journal › Abstract (Journal) › peer-review

Original language	English
Number of pages	2
Journal	MOLECULAR GENETICS AND METABOLISM
Volume	141
Issue number	2
DOIs	https://doi.org/10.1016/j.ymgme.2023.107974
Publication status	Published - Feb 2024

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10.1016/j.ymgme.2023.107974

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Muschol, NM., Burton, BK., Ficicioglu, C., Magner, M., Gil-Campos, M., Lopez-Rodriguez, M., Jayakar, P., Lund, A., Tal, G., Garcia, JE., Stepien, KM., Ellaway, C., Al-Hertani, W., Giugliani, R., Cathey, S., Hennermann, JB., Lampe, C., McNutt, M., Lagler, F., ... Guffon, N. (2024). A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis. MOLECULAR GENETICS AND METABOLISM , 141(2). https://doi.org/10.1016/j.ymgme.2023.107974

Muschol, NM ; Burton, BK ; Ficicioglu, C et al. / A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis. In: MOLECULAR GENETICS AND METABOLISM 2024 ; Vol. 141, No. 2.

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title = "A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis",

author = "NM Muschol and BK Burton and C Ficicioglu and M Magner and M Gil-Campos and M Lopez-Rodriguez and P Jayakar and A Lund and G Tal and JE Garcia and KM Stepien and C Ellaway and W Al-Hertani and R Giugliani and S Cathey and JB Hennermann and C Lampe and M McNutt and F Lagler and M Scarpa and VR Sutton and N Guffon",

year = "2024",

month = feb,

doi = "10.1016/j.ymgme.2023.107974",

language = "English",

volume = "141",

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Muschol, NM, Burton, BK, Ficicioglu, C, Magner, M, Gil-Campos, M, Lopez-Rodriguez, M, Jayakar, P, Lund, A, Tal, G, Garcia, JE, Stepien, KM, Ellaway, C, Al-Hertani, W, Giugliani, R, Cathey, S, Hennermann, JB, Lampe, C, McNutt, M, Lagler, F, Scarpa, M, Sutton, VR & Guffon, N 2024, 'A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis', MOLECULAR GENETICS AND METABOLISM , vol. 141, no. 2. https://doi.org/10.1016/j.ymgme.2023.107974

A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis. / Muschol, NM; Burton, BK; Ficicioglu, C et al.
In: MOLECULAR GENETICS AND METABOLISM , Vol. 141, No. 2, 02.2024.

Research output: Contribution to journal › Abstract (Journal) › peer-review

TY - JOUR

T1 - A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis

AU - Muschol, NM

AU - Burton, BK

AU - Ficicioglu, C

AU - Magner, M

AU - Gil-Campos, M

AU - Lopez-Rodriguez, M

AU - Jayakar, P

AU - Lund, A

AU - Tal, G

AU - Garcia, JE

AU - Stepien, KM

AU - Ellaway, C

AU - Al-Hertani, W

AU - Giugliani, R

AU - Cathey, S

AU - Hennermann, JB

AU - Lampe, C

AU - McNutt, M

AU - Lagler, F

AU - Scarpa, M

AU - Sutton, VR

AU - Guffon, N

PY - 2024/2

Y1 - 2024/2

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U2 - 10.1016/j.ymgme.2023.107974

DO - 10.1016/j.ymgme.2023.107974

M3 - Abstract (Journal)

SN - 1096-7192

VL - 141

JO - MOLECULAR GENETICS AND METABOLISM

JF - MOLECULAR GENETICS AND METABOLISM

IS - 2

ER -

Muschol NM, Burton BK, Ficicioglu C, Magner M, Gil-Campos M, Lopez-Rodriguez M et al. A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis. MOLECULAR GENETICS AND METABOLISM . 2024 Feb;141(2). doi: 10.1016/j.ymgme.2023.107974

A Delphi consensus approach to monitoring and integrated care coordination of patients with alpha-mannosidosis

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