Research output per year
Research output per year
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Dive into the research topics where Anja Diem is active. These topic labels come from the works of this person. Together they form a unique fingerprint.
- 1 Similar Profiles
Research output
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Facing the complex challenges of people with epidermolysis bullosa in Austria: a mixed methods study on burdens and helpful practices
Salamon, G., Field-Werners, U., Strobl, S., Huebl, V. & Diem, A. (Last author), 21 May 2024, In: ORPHANET JOURNAL OF RARE DISEASES. 19, 1, 14 p., 211.Research output: Contribution to journal › Original Article (Journal) › peer-review
Open Access1 Citation (Web of Science) -
Psychometric Properties of the Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa patient score (iscorEB-p): a patient-reported outcome measure
Salamon, G., Strobl, S., Field-Werners, U., Diem, A. (Co-author), Schwieger-Briel, A. & Pope, E., 2024, In: BRITISH JOURNAL OF DERMATOLOGY.Research output: Contribution to journal › Original Article (Journal) › peer-review
2 Citations (Web of Science) -
The psychosocial impact of a chronic disease in Ireland: Burdens and helpful practices for a life with epidermolysis bullosa
Salamon, G., Field-Werners, U., Strobl, S., Huebl, V. & Diem, A. (Last author), Jun 2024, In: Health Expectations. 27, 3, 15 p., e14088.Research output: Contribution to journal › Original Article (Journal) › peer-review
Open Access -
Translation, cultural adaptation and validation of the German Quality of life in Epidermolysis Bullosa (QOLEB) questionnaire
Salamon, G., Strobl, S., Field-Werners, U., Welponer, T. (Co-author), Murrell, D. F. & Diem, A. (Last author), 18 Feb 2024, (E-pub ahead of print) In: Journal of health psychology. p. 13591053231221369 15 p.Research output: Contribution to journal › Original Article (Journal) › peer-review
1 Citation (Web of Science) -
Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa
Popenhagen, M., Genovese, P., Blishen, M., Rajapakse, D., Diem, A. (Co-author), King, A., Chan, J., Arasa, E., Baird, S., da Rocha, A., Stitt, G., Badger, K., Zmazek, V., Ambreen, F., Mackenzie, C., Price, H., Roberts, T., Moore, Z., Patton, D. & Murphy, P. & 1 others, , 4 Sept 2023, In: ORPHANET JOURNAL OF RARE DISEASES. 18, 1, 18 p., 268.Research output: Contribution to journal › Review article › peer-review
Open Access
Activities
- 1 Organising a conference, workshop, ...
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EB2017 - 5te EB-Forschungs und 4te EB-CLINET Weltkonferenz
Mayr, E. (Member of the organisation committee), Murauer, E. M. (Member of the organisation committee), Bauer, J. (Scientific member of the advisory board) & Diem, A. (Scientific member of the advisory board)
24 Sept 2017 → 27 Sept 2017Activity: Participating in or organising an event › Organising a conference, workshop, ...